Rare cancers

Rare cancer Agency Consulting firm Experts Specialists Consultancy

Better identify, diagnose and treat rare cancer patients

The Alcimed team has been exploring for more than 25 years the field of rare cancers such as for example sarcoma or different types of carcinoma. We support our clients to better understand where patients are located, how research can bring benefits and how new types of treatments can be established at valued costs and return on investment.

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    The challenges related to rare cancers and rare tumors

    Because a rare tumor is relatively not common, there is often limited research and treatment options available for these diseases. People with rare tumors may face difficulties in obtaining a timely and accurate diagnosis, as well as in finding appropriate treatment options. Likewise, the level of information and awareness is relatively small and aggravates the health issues for patients as many physicians cannot connect the dots and won’t recognize unspecific symptoms with a rare cancer.

    A rare cancer also can have a significant psychosocial impact on patients and their families, as they may feel isolated and unsupported due to the lack of awareness and knowledge about the disease.

    They also represent a difficult field for pharma players. Indeed, research can be difficult as not many patients are available. Likewise, and for the same reason, clinical trial development can be lengthy and costly and reimbursement outcome is often unclear in case payers are not convinced in the safety or efficacy of a new drug.

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      How we support you in your projects related to rare cancers

      For more than 25 years, Alcimed has been supporting its clients on many issues related to rare diseases on one side, and in oncology on the other side. As rare cancers are naturally at the crossroads between the two, we have developed a great experience in this field, through our projects and our continuous monitoring of this field. Do not hesitate to visit our Oncology Resource Center to find out more!

      The diversity of our clients (pharmas, biotechs, research centers, professional associations, national institutions, …), the geographical fields we explore, and the types of projects we carry out, gives us a global and in-depth understanding of the issues addressed in the field of rare cancers.

      Our projects include topics as diverse as new technologies and therapeutic approaches for orphan diseases, understanding disease management and patient care pathways, assessment of market opportunities and licensing, market access, pricing and reimbursement, regulatory evolution, and operational support (patient identification, optimization of care pathways, etc.).

      What they say

      • TCV_Institut_Curie_miniature_site_EN_min

        Dr. Amaury Martin

        Directeur adjoint de l’Institut Curie

      Examples of recent projects carried out for our clients in rare cancers

      • Clinical development and launch strategy of an asset

        Alcimed supported a top pharma player in defining the strategy of an early asset in a rare cancer indication.

        We helped our client to understand the current treatment pathways in addition to needs and challenges linked to it, find trends in the indication, and aimed to understand how these trends and underlying future technologies will impact the current treatment pathway and shape it in the future. We also worked on the evaluation of direct and indirect competitors and collaborated on the development of the short- and mid-term asset strategies.

        Our work allowed our client to optimally plan and develop clinical trials and prepare for the launch of the asset.

      • Study of the regulatory framework for the accessibility of treatment for orphan diseases

        We supported a player in the pharmaceutical industry in understanding the fundamental factors of market access for orphan drugs in 9 emerging countries.

        By taking stock of internal knowledge and collecting missing information in terms of market and regulatory analysis in particular, Alcimed has enabled its client to obtain an overview of the regulations on orphan drugs in emerging countries and to classify these countries according to their level of accessibility.

      • Preparing the launch of a new oncology product for pediatric patients in Germany

        We helped our client, a leading pharma player, to understand the treatment pathway of childhood tumor in general from being diagnosed to treatment to monitoring, even after children become adolescent.

        We identified key blocking points along the care pathways, and mapped treatment and diagnosis centers and key stakeholders in Germany.

        This included patient associations, physicians, or social workers and allowed our client to optimally plan activities to support the launch of the new drug.

      • Market sizing of a new technology in Barrett’s Esophagus (towards esophageal adenocarcinoma) and in Peritoneal Carcinomatosis

        We helped our client to understand the potential for a given technology in these patient segments through the deciphering of the current needs, ending up with an estimate of the market size in the 2 indications.

        A deep understanding of patient management but also pathway allowed is to draw options to include such a new technology into different national reimbursement systems.

        The analysis allowed our client to take a decision not only if the development of the technology should be further pursued but also helped the client to plan market access efforts in prioritized countries as well as helped in planning clinical trials.

      • Decoding of the care pathway of patients diagnosed with sarcoma

        Alcimed worked with a top pharmaceutical client to analyze the care pathway of patients diagnosed with sarcoma, a rare cancer.

        Through specific research into the pathology and the organization of care, as well as interviews with healthcare professionals in the field, we were able to define the care pathway and identify the painpoints. This study allowed to clearly understand the care pathway, the involved stakeholders, the key challenges that exist and the best practices to facilitate care.

        Thanks to our work, our client identified two strategic levers that stood out to improve the efficiency of the care pathway for patients with sarcoma, and obtained clear and precise actions to implement.

      • Identification of rare cancer indications with potential strategic fit to a pharma player’s portfolio

        Alcimed worked with a top pharmaceutical client to identify and characterize rare cancer indications with high unmet medical needs that could fit with their current portfolio.

        To do so, we carried out qualitative interviews with experts in oncology and analyzed scientific literature on this specific topic to identify key indications where rare cancers had high unmet medical. We then prioritized the most interesting indications for our client and challenged them with him during a workshop. Then, we interviewed other experts specializing in the indications we prioritized in order to gain a complete picture on each indications.

        In the end, some indications were included in ongoing projects. Our study also helped to speed up proof-of-concept and identify potential collaboration partners.

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